Institutional Resources and Databases


Agency for Healthcare Research and Quality (of the U.S. Department of Health and Human Services). The Mental Health section of AHRQ’s site provides a copious compendium of research oriented reports and documents.

Disability Research Right to Know (DRRK) is a website with a resource for consumers, researchers, providers, policy makers and their associations. Through research syntheses, information products, and its community forum, DRRK seeks to foster the everyday use of disability research. The DRRK site, managed by the Boston University Center for Psychiatric Rehabilitation, is funded by the National Institute for Disability and Rehabilitation Research.

Mental Illness is a one-man “think-tank” founded in 2011 to provide information to the media and policy-makers about care and treatment of people with serious and persistent mental illness. Different from those with mental “health” issues, this 5-8% segment of the  population is uniquely associated by difficult issues like violence and involuntary treatment, issues many organizations prefer to avoid. Its founder is Mr. D.J. Jaffe, co-founder with Dr. E. Fuller Torrey of the Treatment Advocacy Center and brother-in-law of an individual with schizophrenia. See D.J. Jaffe’s blog on Huffington Post here.

Motivational Interviewing, a website for clinicians, researchers, and trainers, offers a sopious compendium of resources on this important communicating technique, a practiced method which invovles “active listening.” Some of the material may be a little technique, but the concept can be a powerful tool for families particularly in turbulent moments of their odysseys.

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